© Ian Anderson Continuing Education Program in End-of-Life Care
Grief & Bereavement:
A Practical Approach
Ian Anderson Continuing Education
Ian Anderson Continuing Education Ian Anderson Continuing Education
Ian Anderson Continuing Education
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© Ian Anderson Continuing Education Program in End-of-Life Care
Module Objectives
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1. Define grief & bereavement.
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2. Describe some of the models of grief.
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3. Describe factors influencing grief.
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4. Describe complicated grief.
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5. Describe a practical approach in the
management of grief.
© Ian Anderson Continuing Education Program in End-of-Life Care
Introduction to Grief
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Grief is a normal phenomenon common to
all of us.
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As we go through life, we experience a
wide variety of losses for which we grieve.
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It is not possible to go through life without
suffering losses.
© Ian Anderson Continuing Education Program in End-of-Life Care
Introduction to Grief
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Grief is the response to any loss and is therefore a
common human experience.
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a common but often unrecognized part of life cycle
changes.
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often seen as interfering with life, rather than being
intrinsic to life. Subsequently
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We do not mentor our children concerning this
aspect of life.
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we tend to protect them, not only from death, but
often also from the little losses that happen
throughout our lives
© Ian Anderson Continuing Education Program in End-of-Life Care
Introduction to Grief
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A terminal illness or indeed any chronic
illness is replete with successive losses and
consequent grief.
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Losing your own life i.e. dying is
associated with grief.
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Losing a loved-one is also associated with
grief. Who feels the grief – all ages, all
persons and often care providers.
© Ian Anderson Continuing Education Program in End-of-Life Care
Introduction to Grief
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Grief starts with the symptoms of illness
and the diagnosis of any illness.
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Good end-of-life care has incorporated the
concept of good grief (i.e. a healthy
expression of our life force) as part of a
good death.
© Ian Anderson Continuing Education Program in End-of-Life Care
Grief is:
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a life experience to be lived.
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a mystery to be entered.
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a stimulus for compassion and kindness.
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a reminder of who and what we have loved.
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a longing for relatedness.
© Ian Anderson Continuing Education Program in End-of-Life Care
Definitions
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GRIEF
is the process of psychological, social &
somatic reactions to the perception of loss.
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MOURNING
is the cultural response to grief.
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BEREAVEMENT
is the state of having
suffered a loss.
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GRIEF WORK
is the work of dealing with
grief, requiring the expenditure of physical and
emotional energy.
© Ian Anderson Continuing Education Program in End-of-Life Care
Grief Models
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No one accepted model.
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Grieving is:
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active
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healing
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skillful
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transformative
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connective
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social
© Ian Anderson Continuing Education Program in End-of-Life Care
Background Issues and Factors in Grief:
Compounding of Losses
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A single loss will precipitate other losses.
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e.g. the physical loss of a breast through a
mastectomy for breast cancer will cause
losses in the areas of body image, sexuality,
role, good health and independence.
© Ian Anderson Continuing Education Program in End-of-Life Care
Background Issues and Factors in Grief:
Characteristics of the Bereaved
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Inconclusive evidence that men do more
poorly than women but there are
differences in the way grief may be
handled.
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There are more consequences in children
especially if grief is not managed well.
© Ian Anderson Continuing Education Program in End-of-Life Care
Background Issues and Factors in Grief:
Characteristics of the Bereaved
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Older persons in general may have less
intense & fewer reactions but this depends
somewhat on the relationship to the
deceased.
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Often overlooked is the intense grief
subsequent to the loss of adult children.
© Ian Anderson Continuing Education Program in End-of-Life Care
Background Issues and Factors in Grief:
Characteristics of the Bereaved
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Poor physical health may limit the ability
to expend the necessary physical and
psychic energy to integrate grief into our
lives.
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The use of drugs such as psychotropic
agents.
© Ian Anderson Continuing Education Program in End-of-Life Care
Background Issues and Factors in Grief:
Characteristics of the Bereaved
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A previous history of psychiatric problems
or addictions like alcoholism.
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There are few conclusive studies about the
influence of personality variables and the
course and outcomes of grief.
© Ian Anderson Continuing Education Program in End-of-Life Care
Background Issues and Factors in Grief:
Characteristics of the Bereaved
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Patterns of coping.
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Past or current experiences with grief.
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Current other psychological or social
problems or crises.
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Culture, ethnicity & religion.
© Ian Anderson Continuing Education Program in End-of-Life Care
Background Issues and Factors in Grief:
Characteristics of the Bereaved
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There is a unique nature to each
relationship.
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The role that deceased had in family e.g the
power authority in the family.
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The amount of unfinished business in the
relationship.
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Dysfunctional families will react in their
usual patterns – they will be dysfunctional!
© Ian Anderson Continuing Education Program in End-of-Life Care
Background Issues and Factors in Grief:
The Nature of the Death
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There are no studies indicating significant
differences between acute vs. chronic
deaths as far as outcomes are concerned but
many of studies have not been done in
populations receiving good palliative care.
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Violent deaths such as those secondary to
crime or accidental deaths.
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Suicidal death.
© Ian Anderson Continuing Education Program in End-of-Life Care
Background Issues and Factors in Grief:
Characteristics of the Deceased
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The age of the deceased particularly if
young will affect the course and outcomes
of grief.
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The type of person the deceased was.
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The timeliness (e.g. at retirement, around
the time of an important event such as the
birth of a grandchild, a marriage of a child,
etc.) may influence the course and outcome
of grief.
© Ian Anderson Continuing Education Program in End-of-Life Care
Background Issues and Factors in Grief:
The Adequacy of Social Support
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Persons lacking or withdrawing from
support may have worse outcomes.
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Remarriage or other close or intimate
relationships protect.
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Culture.
© Ian Anderson Continuing Education Program in End-of-Life Care
Background Issues and Factors in Grief:
Gender Issues
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Men may have different coping styles than
women:
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To remain silent.
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To engage in solitary mourning or “secret”
grief.
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To take physical or legal action.
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To become immersed in activity.
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To exhibit addictive behaviour.
© Ian Anderson Continuing Education Program in End-of-Life Care
Background Issues and Factors in Grief:
Children & Grief
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Children of all ages grieve & grief is
particular to age groups.
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Children should not be protected from
grief, funerals or issues of death & dying.
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They need to be educated in terms they can
understand.
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Parents must be involved in the education.
© Ian Anderson Continuing Education Program in End-of-Life Care
Background Issues and Factors in Grief:
Children & Grief
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Children cope with grief according to their
developmental stage & may re-visit a
grieving situation as they reach new
developmental stages.
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for example, a death witnessed as a toddler
can resurface & need to be addressed again in
a 7-year-old.
© Ian Anderson Continuing Education Program in End-of-Life Care
Psychological Phases of Normal
Grief
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Need to be interpreted not necessarily as
sequential but more likely concurrent
processes through much of the grief
experiences that change and remit over
time until healing occurs.
© Ian Anderson Continuing Education Program in End-of-Life Care
Psychological Phases of Normal Grief:
Acute or Self Protective Phase
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Initial shock, denial and disbelief.
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May feel dissociated from the world around them
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If family well prepared, there may not be the
same amount of shock or avoidance.
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Sometimes initially see an intellectualized
acceptance without an emotional component as
an initial denial of the loss, rather than a
necessary self protective mechanism.
© Ian Anderson Continuing Education Program in End-of-Life Care
Psychological Phases of Normal
Grief: Confrontation:
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Most intense experience of grief.
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Emotional extremes common.
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an emotional “roller coaster”.
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Rapid and large swings in emotion often
cause fear & more anxiety.
© Ian Anderson Continuing Education Program in End-of-Life Care
Psychological Phases of Normal
Grief: Confrontation:
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Anger is a common component including
anger that may be directed towards
physicians and other health care team
members.
© Ian Anderson Continuing Education Program in End-of-Life Care
Psychological Phases of Normal
Grief: Confrontation:
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Guilt, inwardly directed anger, confronts
the bereaved with questions of :
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“What if I had….?”, “Did I do enough?”,
“What did I do wrong?” “What did I do to
deserve this?”
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Guilt around so- called survivor guilt.
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“Why wasn’t it me?”
© Ian Anderson Continuing Education Program in End-of-Life Care
Psychological Phases of Normal
Grief: Confrontation:
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Sadness & despair.
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Inability to concentrate or process
information.
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Preoccupation with the deceased.
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Over time the extreme emotional swings
lessen.
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Intermittent denial may also occur.
© Ian Anderson Continuing Education Program in End-of-Life Care
Psychological Phases of Normal
Grief: Confrontation
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Social manifestations of this phase include:
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Restlessness & inability to sit still.
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Lack of ability to initiate & maintain
organized patterns of activity.
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Difficulty completing or concentrating on
tasks at work.
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Withdrawal from the very people who may be
able to help.
© Ian Anderson Continuing Education Program in End-of-Life Care
Psychological Phases of Normal
Grief: Confrontation
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Physiological or somatic manifestations of
grief are common:
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Often these complaints bring the bereaved
into physicians’ offices.
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The elderly bereaved are a group
vulnerable to illness and physical
symptoms must be addressed appropriately.
© Ian Anderson Continuing Education Program in End-of-Life Care
Psychological Phases of Normal
Grief: Confrontation
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Spiritual issues:
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The basic search for meaning and value in
life, i.e. “who am I?”
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The feeling of abandonment & anger.
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Fear of the unknown.
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Finding a secular framework to face the
unknown – the mystery of death.
© Ian Anderson Continuing Education Program in End-of-Life Care
Psychological Phases of Normal
Grief: Reestablishment:
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Grief gradually softens to an “acceptance”
of the reality of the loss.
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Gradual decline in symptoms as grief
becomes integrated into life.
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Grief is compartmentalized but periods of
grief may arise at specific times such as
holidays, birthdays, etc.
© Ian Anderson Continuing Education Program in End-of-Life Care
Complicated Grief
1.
Delayed or absent grief.
2.
Conflicted grief.
3.
Chronic grief.
4.
Psychiatric disturbances associated with
grief.
5.
Physical illness associated with grief.
© Ian Anderson Continuing Education Program in End-of-Life Care
The Four Tasks of Mourning
(Worden)
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To accept the reality of the loss.
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To experience the pain of grief.
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To adjust to an environment in which the
deceased is missing.
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To withdraw emotional energy and reinvest
it in other relationships.
© Ian Anderson Continuing Education Program in End-of-Life Care
Grief Counseling Goals
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To increase the reality of the loss.
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To help the bereaved deal with both experienced
& latent affect.
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To help the bereaved overcome impediments to
readjustment.
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To encourage the bereaved to make a healthy
emotional withdrawal from the deceased &
reinvest energy into other relationships
© Ian Anderson Continuing Education Program in End-of-Life Care
Management: Basic Issues
1.
Begin grief counseling if possible while
the patient is still alive.
2.
The family is the unit of care.
3.
Grief is a normative process and requires
much listening and often not a lot of
intervention on the part of the counselor.
© Ian Anderson Continuing Education Program in End-of-Life Care
Management: Basic Issues
4.
Allow sufficient time to grieve.
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Most people resolve to a level of functioning around
one year.
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Some individuals and families will accomplish the
tasks of grieving in two years.
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Advocate for sufficient time off from work for the
bereaved especially in the first few weeks of
bereavement.
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Discuss the fact that grief spikes continue for life
through events, holidays and “anniversary” reactions.
© Ian Anderson Continuing Education Program in End-of-Life Care
Management : Basic Issues
5.
Emphasize the role of the funeral and of
memorial service.
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Encourage families to bring children to these rites.
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Consider having memorial services in hospitals,
agencies and palliative care programs for bereaved
families and for staff.
6. Medications, particularly tranquillizers and
antidepressants are usually not needed for any
sustained period of time.
© Ian Anderson Continuing Education Program in End-of-Life Care
Management: Basic Issues
7. Contact the bereaved at regular intervals.
! Definitely monitor any families with high risk
for grief problems.
8. Identify concurrent problems that may
interfere with normal grief.
© Ian Anderson Continuing Education Program in End-of-Life Care
Management: Basic Issues
9. Use resource books that have been written
on grief to help the bereaved.
10. Monitor children at school for grief
problems manifesting as school problems.
11. Investigate to see what types of
bereavement programs exist in your
community.
© Ian Anderson Continuing Education Program in End-of-Life Care
Nature of Grief Work
a) Family (friendship) orientated:
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The ability to accept loss is at the heart of all
skills in healthy family relation.
b) Relational:
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Opportunities for resolution, forgiveness,
gratitude.
© Ian Anderson Continuing Education Program in End-of-Life Care
Nature of Grief Work
c) Intergenerational:
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How we want to be remembered.
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Legacy work e.g. what are we leaving behind as a
legacy.
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Healthy and effective parenting model.
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Mentorship re: coping skills with children.
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Decreasing fear in future generations.
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Teaching children.
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Learning from children.
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People die, relationships don’t.
© Ian Anderson Continuing Education Program in End-of-Life Care
Nature of Grief Work
d) Psycho educative:
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Anxiety about the unknown.
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What changes to expect.
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Forewarned is forearmed.
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Physical & emotional.
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Changing family dynamics/roles.
© Ian Anderson Continuing Education Program in End-of-Life Care
Nature of Grief Work
e) Harm reductive/preventative:
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Identifying destructive coping mechanisms.
i.e. alcohol/drug use.
f) Community oriented:
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Looking at the larger social interaction e.g. in
school or workplace.
g) Active:
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What we need to do in order to integrate how
we are changed?
© Ian Anderson Continuing Education Program in End-of-Life Care
Nature of Grief Work
h) Narrative:
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Richly descriptive in elucidating personal
meaning – ‘Tell me what it is you see death
or this loss as?”
i) Supportive:
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Facilitating the safe containment of emotional
space.
© Ian Anderson Continuing Education Program in End-of-Life Care
Nature of Grief Work
j) Intrapsychic:
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Facilitating connection to our own deeper
wisdom and ability to heal ourselves.
k) Spiritually supportive:
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We are dealing with the unknown, with life’s
mysteries.
© Ian Anderson Continuing Education Program in End-of-Life Care
Summary
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Grieving is the active way by which we
incorporate grief into our lives and discover how
we are changed by it.
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It is open ended and is continually transformed as
we go through life and experience further losses.
As caregivers we need to be self-aware.
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If we cannot bear our own grief, it will be hard to
work in the presence of another person’s grief.